Treatment odds longer than rabbit proof fence.

i recently heard from the department of Health (wealth) have refused me being able to access any part of my superannuation so i can get treatment with my own money. So though i wont likely live to retirement age the government will probably keep my super funds to pay for another politicians childs private education. Organised crime in action. That was my absolute final option to chase of my own. Any other option results in being homeless as well as broke. My only chance and a whispy thin one is donations from strangers. And at the rate its been so far its not likely to happen while I’m alive either, certainly doesnt give me much hope to fight on. It seems a trial has finally gotten the go ahead in Australia but I didn’t make it in. Maybe it’ll eventually result in Australian treatments one day, cant hold my breath for it happening in a timely manner. The trials should have happened a decade ago when they were asked for. But again our useless government....     ;(

 

Kudos to Feral Interactive

As a fan of motor racing I enjoy motor racing games too. Though without the use of one arm/hand my options are severely limited. I was keen to see their new release to iphone of grid Autosport however as the screenshots didnt make it clear how the racing controls would work (eg requiring two hands like many developers impose) and the game wasn't available free to try for myself, I sent them an email to clarify control options. To my surprise they actually responded helpfully. And have followed up with some helpful control configuration options too.

Its fantastic service that a support area actually responds and a games company usually never will. To top it off Grid Autosport is the best racing game I've played on Iphone and possibly any platform. Every aspectis great, not just the visuals. The soundscape and racing realism with practice and qualifying sessions for many races really make the race events an immersive experience. Its not an arcade racer lke every other game is (even the most realistic are arcadey in contrast to Grid) and you wont be lapping cars on the second lap, you will have to focus and work at winning. But at least its possible without paying extras for upgrades etc. In fact there is not buying cars or upgrades at all it seems. The game is about YOU the DRIVER. Win races and increase your driver standing and various teams will offer you a seat in their car at various events. This is where you get to drive different cars instead of merely collecting them. Different cars also offer different levels of tuning options to tweak to your driving style. Racing disciplines include touring, endurance, open wheelers and drift as well as others so whatever racing you are into there is likely racing here to please you.

A highly recommended game and developer, its so rare to get good support and Feral have been way beyond what I expected and I wanted to acknowledge that.

Disabilty fatigue is different and in addition to regular fatigue

Everything takes effort. The energy for the whole day is often consumed completely within two hours. Sometimes less, I have sleep apnea as well and the energy it takes to try to get to sleep in the least painful position is itself fatiguing, then there's the muscles spams during sleep, and the narcolepsy my extreme fatigue has developed into too which is dangerous as i can fall asleep sitting or standing at any moment. It's beyond my control and nothing like dozing off in front of the TV so no home remedies that apply to that make any positive difference for me, more likely negative.
See: Neuro Fatigue

Ronja Assmann #41 Porsche project completed

A few days ago I finally fully completed this project.A little background, Ronja is a German racing driver. She has enjoyed success in the Renault Clio Cup category and has progressed to GT3 with the Porsche Carrera Cup in 2017. I noticed her being interviewed in 2016 at the Nurburgring 24hr and was stunned by her enthusiasm as a driver and that has never wavered throughout the racing season. She genuinely loves to race and is proud of her accomplishments to date  but shows no hint of the ego most racing drivers exhibit which makes them often people you don't want to see succeed. Her rarity in a challenging sport where she brings skill and positivity to often dreary races inspired me to try to see if I could find her car as a scale model to add to my collection. I couldn't find one, so I decided to try to make my own instead.

Ronja on the Lausitzring, May 2017Photo supplied by Ronja.

Ronja on the Lausitzring, May 2017

Photo supplied by Ronja.

This became a challenge to myself to see if I could even make something that was ok and not a mess. Having the use of only one arm and failing eyesight I knew I'd have to try different methods for different aspects of this project. The first race I watched Live of Ronja racing was in May 2017 at the Lausitzring and she was new to the category and car so it had a relatively simple livery on it so this was my target car to add to my collection. It took a lot of time to find a good base model car to start with that was as close to her race spec version as possible. Below is what I found which wasn't terribly different and seemed a realistic challenge for my lack of modelling skills. Several layers of clear cote and the whole car really popped so time to leave it be and paint a track surface for the paint. I couldnt paint my way out of a wet paper bag and its probably too light grey even though its that light in photos that'll be because they werent taken with a polariser filter properly. Still, i kept it as i had a background insert to put behind the car when i put the casing over the car so its in its natural setting.

The following day it was safely packed and on it way hopefully to Ronja. The car came out far better than I thought it would and its something I'm proud of. Ronja has impressed me with her achievements/entusiasm and gratious with her time with fans and so I wanted to give it to her as a show of support. Maybe it'll make her smile when times going rough and I hope she continues to succeed!

BEFORE: The starting base model Porsche I found to use.

I started with seeking out source reference material so I could hopefully see the real car from all angles to identify body differences and sponsorship and livery details I would have to tackle. There are air intakes on my source model that are not on the race car and vice versa. So I got to play with some air-drying modelling clay tofill in the largest holes and reshape the body lines accordingly. Porsches have nice bodies so this was easy and intuitive. It took several days each hole as i wanted the clay to set and see if it cracked or shrunk (it didn't), maybe do a little more if I hadn't used enough and go over with smooth sandpaper to try to get the bodyshape blended in smoothly. Tackling the livery details, I sourced good quality logos as best I could to match the ones on the car. I did a bunch of testing with printing my own as stickers to see how detailed and colourfast they were. Stickers I thought would be easy to place and remove if I messed up. Which i did, being so tiny they were hard to cut from backing sheet and keep flat to place back the often curled and preferred to stick to my finger instead :) So i had to remove and reprint them a few times before I was happy with the results.

Several layers of clear cote and the whole car really popped so time to leave it be and paint a track surface for the paint. I couldnt paint my way out of a wet paper bag and its probably too light grey even though its that light in photos that'll be because they werent taken with a polariser filter properly. Still, i kept it as i had a background insert to put behind the car when i put the casing over the car so its in its natural setting.

The following day it was safely packed and on it way hopefully to Ronja. The car came out far better than I thought it would and its something I'm proud of. Ronja has impressed me with her achievements/entusiasm and gratious with her time with fans and so I wanted to give it to her as a show of support. Maybe it'll make her smile when times going rough and I hope she continues to succeed!

AFTER: Finally all done and reassembled, next day its in the post.

AFTER: Finally all done and reassembled, next day its in the post.

Nearing completion of Ronja's porsche.

For several months I've been slowly working on converting a scale model Porsche into the race liveried version driven in May 2017 by up and coming German driver Ronja Assmann. Very close to completing it and I should be able to post pics before/after soon.